Once a week we get an email from someone saying they want solid medical research about the SCD Diet before they will try it.
My response is usually, “Please start by reading all these success stories we’ve been sharing with our readers. These are real people trying the diet and sharing their success in their own words. Then, try the diet for 30-days and see how you feel. The only person like you IS you… so the best thing is to try it and see if it actually works for you.”
In my opinion, I’ll believe legitimate anecdotal stories from people like me over diet studies any day.
However, I can’t tell you how excited I was to see some of the new quotes coming out from a recent Rush University SCD study (1). Like this one:
“I have observed that a small number of my own IBD patients drastically improved on the SCD and achieved complete long-term mucosal healing, or were able to reduce or discontinue immunosuppressants for several years.”
So today I’m very excited to share that quote with you, but also to share another courageous story of a teenager who overcame Crohn’s Disease. This story was submitted by Gabriel’s parents and is absolutely inspirational.
I do have one warning before you read on: they chose to use a meal replacement supplement before starting SCD. We don’t have any experience with it and we don’t recommend it for that reason. I will say that the ingredients list I found for it shows it contains many ingredients that can be hard on people with IBD. Things like: corn syrup, acid casein, sucrose, and corn oil. They also come with flavor packets in the form of “‘Chocolate Deluxe, Orange Dream, French Vanilla, Cappuccino, Irish Cream, Banana Cream, and Bubble Gum.” Given that information, please know this post is not our endorsement for this product in any way and we’re not supporting it.
That said, I still think their story is an incredible one to share and SCD plays a critical role in his success.
In general, the first step is always to remove the inflammatory foods like grains and begin to heal… and we typically recommend the intro diet for that. But the important thing is they got that accomplished in their own way before transitioning to SCD and that’s cool with me. Everyone has a custom solution that works for them and the beautiful thing is Gabriel has worked hard to figure his out 🙂
[Enter Yelena and Alexander]
Our son Gabriel was diagnosed with Crohn’s disease 4 years ago when he was just 10 years old. We still remember that summer…
First Came the Debilitating Symptoms
First, he started complaining about painful joints and we thought it might be growing pains. Then, he became low in energy and developed a fever. Furthermore, his MD diagnosed him with Mononucleosis. “Give it some time, it will pass on it’s own,” she said. We waited patiently for one month, two months… and nothing happened. We continued to worry as he dropped pound after pound (15 lbs to be exact), which is 20% of his weight! By that time, he was totally out of energy and white like snow.
Then the Diagnosis…
Finally, after much time and suffering had passed he was diagnosed with Crohn’s disease. In our meeting with the hospital team, we were given a choice between steroid treatment or 2 months of Modulen IBD. Fortunately, our 10-year-old boy understood that steroids wouldn’t do anything good for him and agreed to start with the Modulen IBD and nothing else (really nothing else). It wasn’t easy at all to switch from solid food to liquid “drinks.”
In just 1 month’s time, his blood tests (C-reactive protein (CRP), iron and ferritin) came back normal! After 2 months, he gained back all of the weight and the blood test results continued to remain steady. Color returned to his face. We were absolutely amazed, but (there always must be a BUT) the help seemed to end there. Nobody could tell us how to continue and provide us with recommendations of how to end the Modulen IBD. The doctors just said that the next step would be to go with steroids.
By that Time, We “Discovered” the SCD
For Gabriel, the Modulen IBD replaced the intro diet, and we started the SCD from stage 2, but we were truly dedicated and followed the diet “by the book” in every sense of the word after that. Thankfully, Gabriel’s blood tests stayed within range, but the weight dropped once again.
After some time had passed, excessive urea appeared in Gabriel’s blood during a routine check up. We’ve since been told that he was eating too much protein. Then, we searched for possibilities of safe additions to supplement his diet. White rice seemed to work okay for him.
After 4 Years of Struggling, Here We are Medication-free
Once every summer, though, Gabriel will have a flare up and we’ll have to get out the Modulen IBD. Then, after the CRP is back to normal, we slowly replace Modulen IBD with “normal” food, strictly in accordance to the SCD stages. This seems to be working well and also keeps him from dropping weight. We’ve come a long way, but there’s still work to be done
On a regular basis, Gabriel follows SCD with some “safe” exceptions like rice, potatoes and quinoa. No sugar, no gluten, no lactose whatsoever, though. We just recently made the connection of his flares to the summer time so it’s our newest goal to uncover the trigger(s). We are strongly considering following more closely to proper SCD plans towards the summer months.
This just might be our way and only suited for our son, but hopefully our experience will help other people. Actually, this is the reason we decided to write this story. Everyone needs to find his own approach… one which works best for them and by all means never give up!
Thank you so much for sharing your story! For me, it’s hard to say what would have happened if they had followed the intro diet instead of the meal replacement… but I’m sure glad Gabriel’s life was saved! That’s all that matters.
If you’d like more help creating your custom version of SCD to see if it will work for you, our book can help:
In good health,